Trigger Warning: Ableism, institutionalization, curebie nonsense
I reference Amanda Baggs piece on institutions a few times, you can and should read it here.
Actually, you should probably read her whole institutions tag. And maybe her whole blog.
I reference Amanda Baggs piece on institutions a few times, you can and should read it here.
Actually, you should probably read her whole institutions tag. And maybe her whole blog.
The
first inside page is an advertisement for Acorn Care and Education's
new house in Lincolnshire. It looks like it might be one of the
institutions that Amanda Baggs wrote about, talking about how they
build the institution in your head instead of drugging and physically
restraining you. It might be a little better since they are talking
about achieving increasing independence as an explicit goal, but I'm
not convinced. I think that the mention of behavioral improvement and
the fact that they are talking about the grounds as how autistic
young adults are maintaining active bodies and minds is nudging me in
the "not good" direction, along with "the community in
which they live" possibly meaning the house community, not a
neighborhood with actual inclusion. I don't really trust that the
people who live there will get to make uncoerced and decisions about
their lives without being constantly guilt-tripped, either.
Next I
see an advertisement for the Sutherland House School, which is run by
a Nottingham reigonal group. It says there is an emphasis on
communication, interaction, and emotional well-being. Communication
is good, though I worry that it will be conflated with speech. That
happens a lot, and it's bad. AAC is communication, behavior is
communication, speech is communication, writing essays is
communication. If they understand that there are lots of different
kinds of communication and are just working to get any kind of
consistent communication up, this could be good. Otherwise, we could
be looking at people taking away AAC devices in an attempt to get
oral speech to happen or just never having provided them. Both of
those are really, really bad. Interaction can be nice, but I don't
think it's a smart place to put the emphasis because forced
interaction is horrible
and meltdown-inducing and needs to stop being a thing. I know of
places that have demanded a person spend time with their abusers in
the common room because it was interaction,
so this worries me. Emotional well-being is important, and I like
that place of emphasis. It can be messed up because of people
assuming that the prerequisites are different than they really are
and then gaslighting the autistic person who has different needs,
but if we're actually
talking about real emotional well-being, this is good. The commitment
to working in partnership with parents and other agencies is nice,
but I notice that they don't say anything about partnerships with the
students. Which is bad, because that's important.
Then
advertisements for tough furniture, which is useful with any kids in
the house because kids are kids and for some books (The Panicosaurus,
which I have not read but sounds like it might be OK, The Asperkid's
(Secret) Book of Social Rules, which could be very good or very bad,
leaning towards decent since it talks about standing out in addition
to blending in, Inside Asperger's Looking Out which I read and found
very cute, and It's Raining Cats and Dogs, which would have been
useful for me as a kid and might be useful now if it is what it
sounds like it might be.)
The
next ad if for assessment software that looks more applicable to
professionals. It's a half-page ad, and below it is an ad for
Sunfield, yet another residential program.
Seriously, what is it with this magazine and advertizing residential
programs (an institution by any other name is still an institution,
folks.) This one brags about a working farm and a sensory integration
studio. It also talks about family focus and how it can do family
visits and family members can stay overnight when they come for
visits. Which is a nice touch, but it's just another coat of paint.
The
next pair of ads is once again assessment software (this one is
apparently focused on things like checking readiness for colleges and
employments, which is potentially useful) and a fourth
residential program. The Whinfell school is for boys age 11-19, and
there isn't much to distinguish it in the advertisement. It says it's
dedicated to autism, which is content-free.
HELLO,
quack cure. The headline is that 15% of us can now eradicate autism
using GcMAF, which is supposed to be a director of the immune system
that autistic people lack. (Yeah, I'm going to want some citations on
that. All of it. That it's got anything to do with the immune system
at all, that all healthy people have it, that autistic people
generally don't have it.) It claims that this GcMAF rebuilds the
immune system and that the immune system then eradicates autism,
which doesn't even make sense since autism isn't a virus or a bunch
of foreign cells or anything that the immune system has the ability
to target. They have a website, and I'm going to have to check that
out since I am still thinking about my "None of your cures work,
people" thing and that one is in dire need of logical
destruction.
(gcmaf.eu)
Below
that is a fifth
program, which can be residential for up to 17 people and have 23
total students. It's called iMap, which stands for "individuals
Making autism postive." I wonder what Apple would have to say
about their capitalization choices? This one doesn't say much either,
and it only shows people in half the pictures, all in therapy
settings. I'm going to go with institution trying to brand itself as
good and send you back to Amanda Baggs piece.
SpeechNutrients
is supposed to be a supplement that provides "nutritional
support of verbal and motor skills." It's also supposed to
reduce oxidative stress, which isn't a great sign. (Remember,
oxidative stress is the "cause" associated with the
hyperbaric "cure" and it's mentioned as a factor with the
miracle mineral solution "cure," also known as bleach.)
Below
it is yet another ad
for a program. Prior's Court is both day and residential, like iMap.
It lists that it is developing independence and life skills, with the
young adult program supposed to be a transitional step towards a more
inclusive life. Which is a nice statement with no meat in it. No,
seriously. None of this has much meat to it. These advertisers really
like their content-free and low-content marketing for these autism
programs. Probably because they don't really want to say that they
are institutions by another name.
And
now we see an ad for the Royal School for Deaf
Children. Um, why a school for Deaf children in an autism magazine?
It sounds like they are specifically trying to advertize to parents
of autistic kids, since they are talking about supports for
communication problems and "additional needs." Makes sense
for Deaf autistic kids, but not as much for autistic people who are
not also Deaf...
And an
ad for Autism Anglia, which seems to be a local autism organization.
One of the services they feel the need to advertize is... you guessed
it, a residential program. They also have day programs and weekly
programs for younger people and supported living for people who need
some help in their own homes. This is the first time I've seen
anything about supported living, independent living in this magazine
(I've just been looking at the ads, so far,) and we're about two
thirds of the way through it.
Conferene
ad. "Inspiration for independent living." It's a
must-attend for parents, carers, and healthcare professionals, but
apparently not for the
people who would actually be doing independent living, autistic
people ourselves. Which is sad, because it looks like the stuff they
are presenting there could be useful. Innovations and tricks for
independent living are useful,
but apparently they are for the parents and carers who are helping us
to live independently. (That makes so much
sense /sarcasm.)
Oh
hey, finally an ad that is potentially relevant to me. Well, it would
have been if I lived in the right country and hadn't missed the
deadline. I like deep
pressure, and a giveaway for a deep pressure vest would have been
cool. The company is called Squease, and they even used a girl for
the picture, which I think is nice since a lot of people don't think
about the fact that autistic girls exist.
It
looks like the next thing is for a transition service, aiming to
transition people to residential placements (seriously how many
residential placements have we seen here...) and supported living.
This one does seem to be actually looking at people over the age of
25 as part of their audience, but still. Everyone seems to be getting
tracked into residential programs (institutions) from a young age as
far as this magazine suggests, and that's creepy.
And...
yet more residential
programs. Portfield School is run by the wessex autistic society, and
yeah, they offer boarding for up to 52 weeks.
Kidz
in the Middle, which already happened, seems rather focused on the
children, but that's to be expected since this is a parenting
magazine. They actually list children with disabilities as part of
the target audience, so that's something. Their exhibitions sound
like there could be some useful stuff there too.
A DAY
PROGRAM. Oh, my goodness. A school that is not offering to take your
kid all 52 weeks of the year. This shouldn't be shocking, but it is.
Maybe the hope is to actually teach the kid as opposed to segregating
them off to the institution for the rest of their lives and calling
their increased compliance (and skills of certain types)
independence. I'm not sure,
but it's possible. Maybe. The upper school has access to the national
curriculum, which sounds like trying to let the students learn the
same stuff everyone else learns.
Of
course, we needed to offer a ninth residential placement
advertisement. This one is run by parents, which actually... kind of
scares me that they think that's going to ease worries. Like, "Oh,
we're worried about letting our daughter out of our sight, so we made
a residential program ourselves and our daughter is in that now."
That's not comforting.
And
two more schools. Possibly residential, possibly day. It doesn't say.
At the end of this magazine, which is only 48 pages including both
covers, there were advertisements for at least nine and possibly as
many as twelve different residential schools or homes, with some
other ads mentioning preparing people for residential programs
offered by others, too. Talk about segregating people when they fail
to magically turn neurotypical. I'm reminded of one of Julia Bascom's
essays from the Loud Hands Project. A child is sent to a residential
program, everything is packed away, and she says that thirteen is too
young to die.
No comments:
Post a Comment
I reserve the right to delete comments for personal attacks, derailing, dangerous comparisons, bigotry, and generally not wanting my blog to be a platform for certain things.