Recently, a friend of mine asked what we wished others knew about meltdowns. (She blogged about meltdowns a while back, too. It was good.) This caused me to make words. Many words.
You see, I have experience at appearing to be more OK than I am. (I think a lot of people have this experience.) I have also been taught, in a variety of ways, that I should not show around other people that I am not OK. And the thing about getting around that is … it takes energy to break that, energy I might not have when I'm not OK. Often, holding on to some appearance of being OK until I am alone is cheaper for me than allowing myself to show that I'm having a problem. (I'm not faking overload. I might be faking not-overload.)
You see, I have experience at appearing to be more OK than I am. (I think a lot of people have this experience.) I have also been taught, in a variety of ways, that I should not show around other people that I am not OK. And the thing about getting around that is … it takes energy to break that, energy I might not have when I'm not OK. Often, holding on to some appearance of being OK until I am alone is cheaper for me than allowing myself to show that I'm having a problem. (I'm not faking overload. I might be faking not-overload.)
Now,
there is still a point where I will melt down, like it or not, and
there are limits to how much I can delay this. So it is possible for
me to melt down in front of people. And most of the people I'm around
would want to help, would want to check in to make sure I'm OK, that
sort of thing. There's just one problem: I reach the point where I
can put up an (unusually expensive) facade of OK before I reach the
point where I'm actually
ready to start putting myself together.
What
this means:
If I
look like I'm on the edge of a meltdown, there are a few questions
you can ask me, one at a time. I'm not going to keep track of a bunch
of questions at a time, really do stick to one. And do not
touch me. I know people do light touch for reassurance but this is a
bad idea. You can
point out a spot that's semi-enclosed (corner, alcove, back to the
wall) and ask if I want to sit there1.
I probably will. Don't push it if I say no. You can offer me a
satin-bound blanket or a fidget toy. I'll probably take you up on
either (or both) of those, but again, don't push it. And you can ask
if I'd like you to leave me alone. I might say yes, but I also might
say no – sometimes, especially if I've got another event coming up
sooner than I'd be able to have the meltdown and start putting myself
back together afterwards, I'm going to prefer to keep delaying. I'm
better at delaying than I really should be, but sometimes this
unfortunate skill gets used. But if I say yes, it's time for you to
go away, and not come
back until either I come looking for you or until the next day. Don't
come check on me to see if I need anything. Don't come check on me to
make sure I'm OK. Because your presence would mean my training to
appear to be OK would make me appear to come out of the meltdown
sooner, and because this is actually bad,
doing either of those things is very likely to ensure that
I am not OK. It will cause me to
put the facade of OK up before the actually OK gets going. It does
not matter how many times you tell me I don't need to put that facade
up for you. I will not, in that state, be able to stop myself from
doing what I've been taught I need to do. Stay away.
No, you are not
the exception to this, because there are none.
If
I am actively melting down, that means I'm in bad enough shape that I
can't
hide it. That's not good, but that does mean there are some things
you might be able to do before I've got enough juice to run the
facade (and not enough to stop myself from doing so if there's anyone
around.) First, do not
touch me. Second, if I am not already curled up in a corner or alcove
or with my back to the wall, offer to help me get to one of those
positions. If I say yes, you can lead me to one. (See above: do not
touch
me to lead me.) Third, if there's a soft, satin-bound blanket around
that I am not already in possession of, putting it near me is a good
idea. (Not on me. Again: do not
touch me.) If I don't seem to understand the offer, this is a cue to
leave. Fourth, melting down burns a lot of energy. I am going to be
tired, hungry, and thirsty. If you can put food and/or liquid that is
ready to be consumed far enough away that I won't accidentally hit it
while rocking or flapping, but close enough that I don't need to
interact with any people
to get at it, this is potentially useful. (Post-meltdown, I am even more likely than usual to get lost somewhere in the process of attempting to create and consume food.) Once location, blanket, and
consumable objects are either taken care of or not, it's time for you
to go away. The same rules apply as if you were heading out before I
actually melted down.
Counterintuitively,
if I start showing any signs of being OK again after I melted down,
that's the point where you absolutely must
leave now.
I'm not OK yet, but I'm starting to be able to fake it and you need
to go away so that I can choose not to do so. Those rules from
heading out before I actually melted down? They still apply. You need
to go away.
1 Weird
as this may seem, if I'm going to the corner or grabbing the blanket
on my own, that's a good sign. It means I've caught on to the low
energy in time to drop the performance, which will buy me more time
able to do stuff before I run out of energy entirely. It also means
I'm still in good enough shape that if I felt I needed to just
leave, I could have done so. This is the part where you get to see a
person getting stuff done while visibly autistic. Just like the
times where I'm pulling out a whiteboard marker, pen, or tablet to
go to class non-speaking, I'm actually fine. Appearing to have my
neurotype is not an emergency.
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