The Advertisements of Autism Eye

Trigger Warning: Ableism, institutionalization, curebie nonsense


I reference Amanda Baggs piece on institutions a few times, you can and should read it here. 
Actually, you should probably read her whole institutions tag. And maybe her whole blog.

The first inside page is an advertisement for Acorn Care and Education's new house in Lincolnshire. It looks like it might be one of the institutions that Amanda Baggs wrote about, talking about how they build the institution in your head instead of drugging and physically restraining you. It might be a little better since they are talking about achieving increasing independence as an explicit goal, but I'm not convinced. I think that the mention of behavioral improvement and the fact that they are talking about the grounds as how autistic young adults are maintaining active bodies and minds is nudging me in the "not good" direction, along with "the community in which they live" possibly meaning the house community, not a neighborhood with actual inclusion. I don't really trust that the people who live there will get to make uncoerced and decisions about their lives without being constantly guilt-tripped, either.

Next I see an advertisement for the Sutherland House School, which is run by a Nottingham reigonal group. It says there is an emphasis on communication, interaction, and emotional well-being. Communication is good, though I worry that it will be conflated with speech. That happens a lot, and it's bad. AAC is communication, behavior is communication, speech is communication, writing essays is communication. If they understand that there are lots of different kinds of communication and are just working to get any kind of consistent communication up, this could be good. Otherwise, we could be looking at people taking away AAC devices in an attempt to get oral speech to happen or just never having provided them. Both of those are really, really bad. Interaction can be nice, but I don't think it's a smart place to put the emphasis because forced interaction is horrible and meltdown-inducing and needs to stop being a thing. I know of places that have demanded a person spend time with their abusers in the common room because it was interaction, so this worries me. Emotional well-being is important, and I like that place of emphasis. It can be messed up because of people assuming that the prerequisites are different than they really are and then gaslighting the autistic person who has different needs, but if we're actually talking about real emotional well-being, this is good. The commitment to working in partnership with parents and other agencies is nice, but I notice that they don't say anything about partnerships with the students. Which is bad, because that's important.

Then advertisements for tough furniture, which is useful with any kids in the house because kids are kids and for some books (The Panicosaurus, which I have not read but sounds like it might be OK, The Asperkid's (Secret) Book of Social Rules, which could be very good or very bad, leaning towards decent since it talks about standing out in addition to blending in, Inside Asperger's Looking Out which I read and found very cute, and It's Raining Cats and Dogs, which would have been useful for me as a kid and might be useful now if it is what it sounds like it might be.)

The next ad if for assessment software that looks more applicable to professionals. It's a half-page ad, and below it is an ad for Sunfield, yet another residential program. Seriously, what is it with this magazine and advertizing residential programs (an institution by any other name is still an institution, folks.) This one brags about a working farm and a sensory integration studio. It also talks about family focus and how it can do family visits and family members can stay overnight when they come for visits. Which is a nice touch, but it's just another coat of paint.

The next pair of ads is once again assessment software (this one is apparently focused on things like checking readiness for colleges and employments, which is potentially useful) and a fourth residential program. The Whinfell school is for boys age 11-19, and there isn't much to distinguish it in the advertisement. It says it's dedicated to autism, which is content-free.

HELLO, quack cure. The headline is that 15% of us can now eradicate autism using GcMAF, which is supposed to be a director of the immune system that autistic people lack. (Yeah, I'm going to want some citations on that. All of it. That it's got anything to do with the immune system at all, that all healthy people have it, that autistic people generally don't have it.) It claims that this GcMAF rebuilds the immune system and that the immune system then eradicates autism, which doesn't even make sense since autism isn't a virus or a bunch of foreign cells or anything that the immune system has the ability to target. They have a website, and I'm going to have to check that out since I am still thinking about my "None of your cures work, people" thing and that one is in dire need of logical destruction.

(gcmaf.eu)

Below that is a fifth program, which can be residential for up to 17 people and have 23 total students. It's called iMap, which stands for "individuals Making autism postive." I wonder what Apple would have to say about their capitalization choices? This one doesn't say much either, and it only shows people in half the pictures, all in therapy settings. I'm going to go with institution trying to brand itself as good and send you back to Amanda Baggs piece.

SpeechNutrients is supposed to be a supplement that provides "nutritional support of verbal and motor skills." It's also supposed to reduce oxidative stress, which isn't a great sign. (Remember, oxidative stress is the "cause" associated with the hyperbaric "cure" and it's mentioned as a factor with the miracle mineral solution "cure," also known as bleach.)

Below it is yet another ad for a program. Prior's Court is both day and residential, like iMap. It lists that it is developing independence and life skills, with the young adult program supposed to be a transitional step towards a more inclusive life. Which is a nice statement with no meat in it. No, seriously. None of this has much meat to it. These advertisers really like their content-free and low-content marketing for these autism programs. Probably because they don't really want to say that they are institutions by another name.

And now we see an ad for the Royal School for Deaf Children. Um, why a school for Deaf children in an autism magazine? It sounds like they are specifically trying to advertize to parents of autistic kids, since they are talking about supports for communication problems and "additional needs." Makes sense for Deaf autistic kids, but not as much for autistic people who are not also Deaf...

And an ad for Autism Anglia, which seems to be a local autism organization. One of the services they feel the need to advertize is... you guessed it, a residential program. They also have day programs and weekly programs for younger people and supported living for people who need some help in their own homes. This is the first time I've seen anything about supported living, independent living in this magazine (I've just been looking at the ads, so far,) and we're about two thirds of the way through it.

Conferene ad. "Inspiration for independent living." It's a must-attend for parents, carers, and healthcare professionals, but apparently not for the people who would actually be doing independent living, autistic people ourselves. Which is sad, because it looks like the stuff they are presenting there could be useful. Innovations and tricks for independent living are useful, but apparently they are for the parents and carers who are helping us to live independently. (That makes so much sense /sarcasm.)

Oh hey, finally an ad that is potentially relevant to me. Well, it would have been if I lived in the right country and hadn't missed the deadline. I like deep pressure, and a giveaway for a deep pressure vest would have been cool. The company is called Squease, and they even used a girl for the picture, which I think is nice since a lot of people don't think about the fact that autistic girls exist.

It looks like the next thing is for a transition service, aiming to transition people to residential placements (seriously how many residential placements have we seen here...) and supported living. This one does seem to be actually looking at people over the age of 25 as part of their audience, but still. Everyone seems to be getting tracked into residential programs (institutions) from a young age as far as this magazine suggests, and that's creepy.

And... yet more residential programs. Portfield School is run by the wessex autistic society, and yeah, they offer boarding for up to 52 weeks.

Kidz in the Middle, which already happened, seems rather focused on the children, but that's to be expected since this is a parenting magazine. They actually list children with disabilities as part of the target audience, so that's something. Their exhibitions sound like there could be some useful stuff there too.

A DAY PROGRAM. Oh, my goodness. A school that is not offering to take your kid all 52 weeks of the year. This shouldn't be shocking, but it is. Maybe the hope is to actually teach the kid as opposed to segregating them off to the institution for the rest of their lives and calling their increased compliance (and skills of certain types) independence. I'm not sure, but it's possible. Maybe. The upper school has access to the national curriculum, which sounds like trying to let the students learn the same stuff everyone else learns.

Of course, we needed to offer a ninth residential placement advertisement. This one is run by parents, which actually... kind of scares me that they think that's going to ease worries. Like, "Oh, we're worried about letting our daughter out of our sight, so we made a residential program ourselves and our daughter is in that now." That's not comforting.

And two more schools. Possibly residential, possibly day. It doesn't say. At the end of this magazine, which is only 48 pages including both covers, there were advertisements for at least nine and possibly as many as twelve different residential schools or homes, with some other ads mentioning preparing people for residential programs offered by others, too. Talk about segregating people when they fail to magically turn neurotypical. I'm reminded of one of Julia Bascom's essays from the Loud Hands Project. A child is sent to a residential program, everything is packed away, and she says that thirteen is too young to die.

Going Through Autism Eye

Trigger Warning for curebie nonsense.

Since I was able to get issue number 8 (that's Winter 2012 for reference) of Autism Eye for free off their website, I'm reading everything in it and providing a commentary, a review, corrections, whatever it is I think it needs, per article. It's actually a lot like what I'm doing with Autism Parenting Magazine, except I don't have any plans to repeat this with later issues since it looks really curebie and biomed heavy. (Autism Parenting Magazine reads to me more as a magazine that is trying to be good but has some work to do. They list Autistic parents as part of their target audience, which is a very strong sign that they are trying. Still going to be blunt about the ways they mess up, though, since if they are trying to be good they would logically want to know about that.)

Anyways, here's my reactions to the cover and the table of contents.

Good food to go nuts over seems OK at first glance. Dairy-free isn't a universal autistic need, and I don't know how common it is, but lactose intolerance, sensory issues, etc are all things. It worries me that this is what they are advertizing as a big important thing, because it suggests they might think it is a universal thing or that it will somehow make autistic people not be autistic any more. It's a flag that there will likely be more wrong, but it's not red alert on its own.

Christmas ideas doesn't look like it has anything to do with autism, but it seems OK from what it says on the cover.

Therapy with a touch of magic. That is a BIG freaking red flag. Alert, alert, this is actual curebie nonsense as opposed to a thing that is useful for some people and assuming use for everyone is the nonsense. It's also probably going to be racist, since we're talking about calling an Indian massage magical. Being massage, as long as we're not setting off sensory meltdowns this probably isn't going to hurt the kid, but again, not a good sign.

The cover image is a mother dragging a kid in a sled, and the headline is about embracing winter fun. That seems fine. No, really. That's typical parenting stuff, and the magazine says right on it that it's for parents and professionals, so typical parenting stuff is typical.

Primitive reflexes: a piece of the puzzle sounds pathologizing and is calling autism a puzzle, which I don't appreciate.

Spotting silent seizures is useful. If they conflate the seizures as being the same thing as the autism that's going to be bad. Autistic people also having seizures is a thing, though. It's pretty common, too, so learning to spot a seizure that isn't a Grand Mal is smart.

Now looking at the table of contents: The first article is talking about a problem that Autistic activists also talk about, restraint and seclusion being used and abused. I am cautiously hopeful about their ability to get a few things right in that piece. The subtitle on the seizure article doesn't look as good as the one on the cover, but it still has the potential to have some good information among the nonsense since seizures really are a thing.

Legal Eye could be anything, recipes still look like just recipes, the Christmas thing is apparently about finding therapy "toys" that can be given for Christmas. The reflexes thing is now very clearly about therapy, which isn't unexpected but isn't a good sign. Winter activities still looks like typical parenting. Computer stuff might reinforce the computer stereotype about autistic people, or it might talk about actual good access things that computers can do for us, and it looks like it's going to talk about ways that computers should be being used for education or therapy. Which could be very good, very bad, problematic packaging of reasonable things, or anywhere in between. The head massage looks just as bad as it sounded before. Floortime gets a mention, which I am cautiously hopeful about since most of what I've heard makes it sounds like playing with your kid. I'm not that hopeful, since anything can be messed up, but it has a hope of containing useful things among the nonsense. Library corner could be anything. 

(Having looked at it, the only book I recognize from Library corner is one that I liked. The rest I'm not familiar with.)