Note For Anyone Writing About Me

Guide to Writing About Me

I am an Autistic person,not a person with autism. I am also not Aspergers. The diagnosis isn't even in the DSM anymore, and yes, I agree with the consolidation of all autistic spectrum stuff under one umbrella. I have other issues with the DSM.

I don't like Autism Speaks. I'm Disabled, not differently abled, and I am an Autistic activist. Self-advocate is true, but incomplete.

Citing My Posts

MLA: Hillary, Alyssa. "Post Title." Yes, That Too. Day Month Year of post. Web. Day Month Year of retrieval.

APA: Hillary, A. (Year Month Day of post.) Post Title. [Web log post]. Retrieved from http://yesthattoo.blogspot.com/post-specific-URL.

Saturday, May 2, 2015

Late for Blogging Against Disableism Day

Disableism/ableism seem to be pretty much the same thing, so far as I can tell, in case anyone is familiar with one or the other. I think it might be a regional thing? Both are about all the kinds of discrimination and stereotyping and barriers that disabled people have to deal with.

I think what I want to talk about today is related to passing (or not passing) and outing myself and what happens after, when people say "I would never have known!" or "You don't need to tell me that!" or "I'm so sorry!"

Because... there is ableism there, and it's the most recent example that's coming to mind. That's a big improvement over last year, when I was struggling with a school that was pretty actively trying to block things I was doing and made attempts at preventing me from coming and then later at having me sent home because I'm autistic. That was really blatant and nasty, and I'm glad to be out, and in comparison what I'm dealing with now- well, let's just say I'm in no hurry to go back to last years situation. Here is good. Now is good. Not perfect, hence still having something to talk about, but pretty good.

So.

Because this is for Blogging Against Disableism Day, or BADD, I figure there might be some folks reading this who haven't read anything else. I'm Autistic, I usually can and do speak at least some, but not always. When speech is either non-existent or not doing everything I need communication for, I write and I use text to speech. I'm also a graduate student in math and a teaching assistant in math, so I work as a math tutor and teach a section of precalculus.

Last Thursday (bit over a week ago) I had two exams in a row, and then two more classes and work. By the end of the exams, speech was not working, which for me is not even a little bit of a surprise. I went to my next class, graph theory, and I mostly didn't need to talk. I wrote a little bit to my classmate who sits next to me, but mostly language wasn't needed. In between that class and the last one of the day, functional analysis/operator theory, I was in the classroom (both classes were in the same room) and one of the engineering students in operator theory came in. He tried to talk to me beyond what I could handle with gestures, so I went to the whiteboard with one of my markers and explained that I couldn't actually talk with my mouth right now and that it was related to my being autistic.

"I'm so sorry."

Um.
Why are you sorry? What is there to be sorry about? In that situation, I can't think of a reason for him to be sorry that doesn't involve ableism.

The assumption that disability is something to be sorry about, something to feel sorry for, is ableist. (Someone not being a fan of their own disability, or being angry about the barriers they face, is very different from someone assuming that we must feel a certain way about our own disabilities.)

When I tell someone I'm Autistic, I don't want the first thing I hear in response to be that they are sorry. I really, really don't want to know how they think I should feel about my autism. I'm not sorry. Why should they be?

2 comments:

  1. Absolutely!
    I've had people just gasp when I mention my son or I are autistic and it's like...huh? Don't you **see me here**? Am I not a person? the person who just taught that class or whatever the heck???

    ReplyDelete
  2. I've had lots of people apologize when I let them know I can't speak. (I'm fully nonverbal, I never speak.) But generally I don't interpret it as ableism without some other indication of it. Mostly, I interpret it as them saying "sorry for imposing on you with my assumptions that you will be able to easily respond to me." Or something along those lines. Mainly because it takes more effort for me to respond than for someone who just opens their mouth and has the (right) words come tumbling out effortlessly. I have to signal to them somehow to wait while I get out/turn on my tablet and/or switch to the right software and then type out my response. It takes a while, it takes visible amounts of effort that speaking don't.

    I'm not saying your response is wrong, or that your perspective is wrong, or anything about what you wrote is wrong. I am also not saying this is what all nonverbal people think or should think. I am just saying, this is what I personally think of it as a nonverbal person.

    ReplyDelete

I reserve the right to delete for personal attacks, derailing, dangerous comparisons, bigotry, and generally not wanting my blog to be a platform for certain things. As long as we stay within those ranges, discussion is AWESOME.