So, since someone is bound to ask why I
call myself an autistic as opposed to a person with autism (or to
insist that I switch, which isn't going to happen,) here is my take
on person first language/identity first language/whatever other
language there might be: I know what I prefer to be called, and you
should call me the way I prefer. I prefer to be referred to as an
autistic or an autistic person. I do this because ``person with" implies that I could also
be a ``person without," and I would be a different person if I
weren't autistic. I also wouldn't take a cure if it existed. (If you
had something that would take out the sensory issues but leave the
way I think alone, I'd take that in a heartbeat. But I wouldn't give
up the rather awesome way my brain works in order to dump the sensory
issues.) So I will call myself autistic, not a person with autism.
That said, if you prefer to be called a
person with autism, a person on the autism spectrum, or to not have
the autistic identity mentioned at all, let me know and that's what
I'll do when describing you. Because the whole person-first language
thing was described to me as being about respecting the person. Thing
is, if person X says ``No, Y is not how I want to be described. I
identify as Z," then even if the point of Y was to be more
respectful, the way to be respectful of person X is to call him or
her Z. This applies to ALL identity issues. So respect my choice, and
I'll respect yours.
P.S. Yes, I've heard that the
person-first language is actually to separate the disability from the
person, and I don't know if it's the case. It also doesn't invalidate
the most important part of my argument, namely that the respectful
thing to do is to refer to a person the way he or she asks you to,
even if you have been told that is the ``wrong" term to use.
Agree! As a person with a 'disability' who works with people with 'disabilities' I've found the most important thing is being genuinely respectful. Labels come and go. Semantics change.
ReplyDeleteI actually wouldn't give up the sensory issues. Yeah, it sucks to find so many things painful or overloading, but I believe that the same wiring that causes me to find jeans painful also causes me to enjoy the feel of velvet or my own hair. And the same wiring that causes me to find sun glinting off of a car so painful also makes me like the way sun glints off of my pale skin when I flap my hands.
ReplyDeleteThere's some evidence to suggest that sensory hypersensitivity can also mean more intense enjoyment of the *right* sensations. For example, people with Williams Syndrome (also known as 7q11 deletion) usually have auditory hypersensitivity and an intense love of music. The few individuals with WS that I've heard of who didn't have auditory hypersensitivity also had a more NT reaction to music, so I suspect the two traits are linked.