Note For Anyone Writing About Me

Guide to Writing About Me

I am an Autistic person,not a person with autism. I am also not Aspergers. The diagnosis isn't even in the DSM anymore, and yes, I agree with the consolidation of all autistic spectrum stuff under one umbrella. I have other issues with the DSM.

I don't like Autism Speaks. I'm Disabled, not differently abled, and I am an Autistic activist. Self-advocate is true, but incomplete.

Citing My Posts

MLA: Hillary, Alyssa. "Post Title." Yes, That Too. Day Month Year of post. Web. Day Month Year of retrieval.

APA: Hillary, A. (Year Month Day of post.) Post Title. [Web log post]. Retrieved from http://yesthattoo.blogspot.com/post-specific-URL.

Tuesday, September 4, 2012

Ignoring the people you say you want to help.

TW: Swearing. Also trying to speak for a group that was probably never spoken to by this person.

So, I received this message anonymously:
Stop being such a hipster about curing autism. Dont be so selfish. it most certainly wouldnt be forced. Because you're forgetting about one thing: money. Chances are people wouldn't even have the money to be cured. So fucking relax.
And this is what I said in response. Takedown time!

1) It’s not being a hipster to hold the MAJORITY opinion. And if you ask 100 autistic adults, guess what? The majority opinion is DO NOT WANT. Despite the fact that adult would be the area most likely to be biased towards the “lower functioning” because of when criteria for autism without a speech delay even came out. Nothing about us without us means you have to care what the people who have the disability want, so YOU stop telling the people you want to help that they must be wrong about what they need.
2) Ok, so how about the part where they are running a test that is assuming the kid is autistic because environment (autism is genetic) and trying to use cord blood to rewire a brain, which is scientifically unfounded. (That’s why they’re only using kids with no KNOWN genetic markers, which means they’ve got a combination of kids who have something like autism that isn’t and kids whose markers haven’t been figured out yet. Meaning not everyone in that study is necessarily actually autistic to begin with.) Which means they are going to be transfusing small children twice (transfusions hurt!) for something that has no reason to do anything, just like all the other fake cures that people would call abuse if it weren’t supposed to cure something that *gasp* even the portion of us you probably think you’re helping with this ask DON’T WANT. I know because I actually talk to them. *le gasp*
3) Go read this. That happened to someone who had already made it to the point of being a college professor. Go find all the stories of how people already HAVE been considered mentally unsound when they refuse treatments for things that are in the brain.
4) No, I remember money quite well. Quite a good section of the people who would be cured involuntarily have some sort of supports. Which also cost money. Denying supports in order to come up with the money to force a cure is the kind of thing I’ve already seen articles gaining popular support for.
5) How about you go have people assume you have the mental age of a two year old,  that you are a robot, that you have had your soul stolen, that crying automatically needs you need a nap even when there is a good reason for the crying, that dealing with you is such a burden, and then give sympathy to parents when they MURDER you. Let’s see how relaxed you are. Don’t tell people how to react to “We’re going to do research to make sure no one like you ever exists again.” The reaction to that is supposed to be outrage, last I checked.

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I reserve the right to delete for personal attacks, derailing, dangerous comparisons, bigotry, and generally not wanting my blog to be a platform for certain things. As long as we stay within those ranges, discussion is AWESOME.