Note For Anyone Writing About Me

Guide to Writing About Me

I am an Autistic person,not a person with autism. I am also not Aspergers. The diagnosis isn't even in the DSM anymore, and yes, I agree with the consolidation of all autistic spectrum stuff under one umbrella. I have other issues with the DSM.

I don't like Autism Speaks. I'm Disabled, not differently abled, and I am an Autistic activist. Self-advocate is true, but incomplete.

Citing My Posts

MLA: Zisk, Alyssa Hillary. "Post Title." Yes, That Too. Day Month Year of post. Web. Day Month Year of retrieval.

APA: Zisk, A. H. (Year Month Day of post.) Post Title. [Web log post]. Retrieved from http://yesthattoo.blogspot.com/post-specific-URL.

Wednesday, June 21, 2017

Alyssa Reads: Critical Studies of the Sexed Brain -- Communication thoughts

I continue my thoughts from reading Critical Studies of the Sexed Brain. Because I had more and then forgot to put them up here. Go me.  Here's the citation again if you want it:

Kraus, C. (2012). Critical studies of the sexed brain: A critique of what and for whom?. Neuroethics,5(3), pp. 247-259.doi:10.1007/s12152-011-9107-7  

And now the quote that got me thinking:

Critical neuroscientists frame the question of a science gap between neuro- and social scientists, experts and the public, just as couple's guides conceive of the gender gap in terms of unawareness, misunderstanding, or ignorance, promoting the idea that all matters can be settled through enhanced communication and better knowledge of each other's distinctive language, culture, needs or concerns.”

This needs more attention paid to it. Here is a big issue: there is a power imbalance. Patriarchy is a word for the imbalance in the couple's guide, and it would relate to the sciences one too since hard sciences tend to be thought of as men's fields while social sciences are thought of more as women's fields. (Accuracy of this thinking is another issue, but STEM in general runs man-heavy.)

That contributes to the rhetorical positioning of the fields, where neuroscientific “facts” can't be questioned by social sciences, even if questioning the facts isn't exactly what's going on. Sometimes it's questioning the causes and interpretation of the reported result rather than questioning whether or not the result was correct, or reproducible. Though the fMRI study of a dead fish is relevant, and so is the fMRI of the same person daily for about a year – fMRI is not infallible, no more than any scientific procedure is, and pretending it is will get us into trouble.

The author then asks about “lay expertise” from patients, relatives, and activists. Since I'm studying neuroscience but came from the Neurodiversity Movement before I got into neuroscience, I wonder where that puts me. As a neuroscience student, I'm one of the science people. As an Autistic person, I'm somewhat a patient. (Not much of one, haven't been in therapy related to autistic traits for a while, but when I write as an Autistic person, I go in that category.) And there is definitely a power difference between the roles. There has to be, for Theory of Mind to have been interpreted to mean autistic people can't understand our own experiences. Not everyone making use of the word thinks that, but it's an interpretation I've seen way too much of.

The author then points to this framework as “preventative politics,” where it keeps the peace by avoiding/assuaging conflict in the name of interdisciplinarity. She argues this could prevent good science that would come from controversy. I'd agree, but also say that it can involve silencing of ideas that aren't status quo as part of the peacekeeping.

Another issue with the focus on communication is that it only works if everyone is acting in good faith. It's the same problem with Nonviolent Communication and similar: if everyone is acting in good faith, it works fine. If anyone involved is actually seeking to maintain control or to do harm, consciously or not, it's not going to work. If one person's goals actively exclude the other person's goals, better communication can lead to figuring this out, but not to solving the problem. Seeking to expand the domain of one's own field without worrying too much about the domain of anyone else's field could lead to a similar failure in interdisciplinary communication ideas.



1 comment:

  1. Alyssa,

    Having just read Brooke's reflective piece on her fifth birthday party ... which made me somewhat "Teary of Mind".

    And this whole "preventative politics"! If I think that way; live that way...

    ReplyDelete

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