Trigger Warning: Passing mentions of ABA and similar therapies
I keep seeing people (mostly people who support therapies that base themselves heavily on compliance, like ABA) arguing that not doing these therapies means leaving Autistic people untaught and providing them with no help. I don't know how it happened, but I keep seeing people assume that there is a binary choice. We can:
What people are missing is a third choice, the choice of providing supports (some of which might be therapy-related) to autistic people in order to help us navigate the world as autistic people and to set the boundaries we need to set. Before you ask, yes, there is a difference between this and most therapies, which tend to ask autistic people to act like their non-autistic age peers or to repeat the same tasks over and over. Acting not-autistic is usually either impossible or requires so much work that little else can be done, the repetition leads to boredom, frustration, and eventually acting out from frustration. Remember, every behavior is the act of an autonomous being who has reasons for acting as they do, and understanding why violent outbursts happen is going to be much more useful than simply punishing them. For everyone involved.
When someone gives you a binary choice between ABA or similar therapies and doing nothing, call them on it. Either they are willfully misleading you or they have been misled. When someone tells you that no therapy is dooming a child to a life of suffering, call them on it. Either they are willfully misleading you or they have been misled. When someone tells you that compliance based therapy is the only way to teach a disabled person, call them on it. Either they are willfully misleading you or they have been misled. There is an option C.
I keep seeing people (mostly people who support therapies that base themselves heavily on compliance, like ABA) arguing that not doing these therapies means leaving Autistic people untaught and providing them with no help. I don't know how it happened, but I keep seeing people assume that there is a binary choice. We can:
- Provide intensive therapies to teach an Autistic person "skills" that are really more like "acting neurotypical"
- Do nothing.
What people are missing is a third choice, the choice of providing supports (some of which might be therapy-related) to autistic people in order to help us navigate the world as autistic people and to set the boundaries we need to set. Before you ask, yes, there is a difference between this and most therapies, which tend to ask autistic people to act like their non-autistic age peers or to repeat the same tasks over and over. Acting not-autistic is usually either impossible or requires so much work that little else can be done, the repetition leads to boredom, frustration, and eventually acting out from frustration. Remember, every behavior is the act of an autonomous being who has reasons for acting as they do, and understanding why violent outbursts happen is going to be much more useful than simply punishing them. For everyone involved.
When someone gives you a binary choice between ABA or similar therapies and doing nothing, call them on it. Either they are willfully misleading you or they have been misled. When someone tells you that no therapy is dooming a child to a life of suffering, call them on it. Either they are willfully misleading you or they have been misled. When someone tells you that compliance based therapy is the only way to teach a disabled person, call them on it. Either they are willfully misleading you or they have been misled. There is an option C.
Yes, to this. YES.
ReplyDeleteExcellent post! And lots of the misleading stems from ABA being the only therapy most insurance will cover (thanks to aggressive lobbying by those who sell ABA for a living.) This really needs to change!
ReplyDeleteThis is really well done. I was very struck by the fact that you needed to put a trigger warning in for ABA being discussed. In my experience, ABA was offered as the only option for my daughter. This is a great call to action, Alyssa!
ReplyDeleteHi,
ReplyDeleteThanks for this excellent blog. I'm 36 year old and have only recently found out that I'm autistic. I had a tumultuous life for almost my entire life and only now started getting the answers to why. I'm still in the process of figuring out exactly who I am, how autism is affecting me, and why some of the things happened to me. I'm seeking autistic peers to help me with my self discovery. I was wondering if I can email you for questions and helpful advices.
You can message my Facebook page facebook.com/yesthattooaut.
DeleteI'm 23 and was diagnosed as a child. I remember most of my therapy/tutoring was about compliance, about how to learn the "right" (read: NT/allistic) way of doing things. I can pass very well for allistic now but.
ReplyDeleteThis entry made me cry. Because I feel cheated and crushed, somehow. Like a square peg that had a bit of luck in being small enough to fit within the round hole. I feel such resentment, wondering what my life could have been had I not been forced into compliance.
I feel like a hole was cut into me and only now, knowing better, can i begin to fill that abscess and heal.
-S