Today, I saw a poster on campus. I see
lots of posters on campus, every day, in fact. Having three or more
classes every day means that I do go into buildings where posters
are. Normally, it's cool. But this is April. Autism Awareness month, and also Autism Acceptance month. I'm more in favor of the
Acceptance month, but the organizations that have money to burn, such
as Autism Speaks? They like awareness. (Over time, you will find that
I don't like Autism Speaks. Specifically, I don't like the way they
are run. I haven't got issues with individual members on the level of
parents who participate, at least, not on the pure fact that they
participate. I wish these parents gave their money elsewhere, but
it's not as if parents get told about groups like ASAN when their
kids are diagnosed with Autism.)
And that brings me to my problem. The
poster on campus was for a fundraiser for Autims Awareness month. It
had the blue puzzle piece that screams ``AUTISM SPEAKS" at me.
The event is this Saturday. Do I go and hope to educate people,
knowing full well that if I do, I will probably spend much of Sunday
curled up in a ball, shaking? Or do I put my own short term mental
and emotional health first? I say short term because long term, the
best thing I can do is live in a world where I can admit to being
autistic and it will be OK. That takes educating people. I also say
short term because I know there is a genetic component to autism, and
there are autistics in both my family and my fiance's family. There
is a very good chance that I will be fighting this battle on the side
of my children some day. I'd like it to be easier then. Long term,
the answer is clearly to go. But I've spent most of the weekend
curled up in a ball shaking every weekend for the last month. But I
have homework, which I would like to get done without pulling another
all nighter. But I have what is likely the only Ultimate Disc
tournament I will get to play in until October on Sunday, and I
haven't gotten to play in a tournament in almost a year. But I have
exams coming up. So I don't know.
Self advocacy, like any kind of
activism, is done by human beings. (I suppose it is also done by any
sentient beings that interact with each other too, but I'm sticking
to humans for now.) I have to remember that. I have to remember that
I need to have time to be human. But I also need to make sure that I
can admit to being who I am without fear that I will then be seen as
not-quite-human. Self advocates have the most to lose. Sure, self
advocates who can't ``pass" the same way I can and usually do
have more to lose than I do. But I have more to lose than advocates
who are not themselves autistic, for one simple reason. Their status
as human beings is not in question. Mine is. And I still don't know.
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